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News

95% of Rare Disease Patients Affected by COVID-19

Updated on June 18, 2020

COVID-19 is causing significant challenges for millions of Americans living with rare diseases. People with underlying conditions are at risk of more severe illness from COVID-19, and rare disease patients, their caregivers and family members are seeing their lives disrupted in numerous other ways. The National Organization for Rare Disorders (NORD) conducted a survey of the rare disease community in early April to help understand and bring […]

Family Narratives

Patient Narrative: The Nozzolillo Family

Posted on December 18, 2019

The word is Grant– in the verb form it means to be given something…the dictionary explains (a right, a power… property etc.) to bestow on, impart to, present with… On August 22nd 2012, my husband Mike and I jumped in the car- as planned- leaving our home in Westwood with my toes manicured, casseroles frozen […]

Family Narratives

Patient Narrative: The Vekiarides Family

Updated on November 11, 2019

We were referred to the National Birth Defect Center (currently known as the Feingold Center for Children), by our pediatrician when Anna was first born. We will be forever grateful for that recommendation. By the time we had gotten to Dr. Feingold, he had many years of experience to draw upon. He knew the immense […]

Family Narratives

Patient Narrative: The DeBlasio Family

Updated on November 11, 2019

When I was 18 weeks pregnant with my daughter, Katie (now 17 years old), my late husband and I discovered that Katie had Down syndrome. For the first year of Katie’s life, she was seen at Children’s Hospital in the Down syndrome clinic. We were living in Waltham and with 3 young children within 3.5 […]

Family Narratives

Patient Narrative: The Simmons Family

Updated on November 11, 2019

When the Simmons family first starting noticing something wasn’t quite right developmentally they brought their son to a specialist. The first specialist told them that he would simply ‘snap’ out of it and that there was nothing to worry about. The second specialist… said the same thing. Dr. Catherine Nowak was different. Michael and Hilari […]

Blogs

High school ambassador program allows students to help with Genesis Foundation

Updated on November 11, 2019

The high school ambassador program for the Genesis Foundation is a very rewarding, positive experience. Leading this program requires a dedicated candidate, however, it builds strong leadership skills as well as benefitting the lives of many local children with birth defects. Work setting up fundraisers, contacting local businesses, holding meetings, etc. is necessary to perform […]

News

The Passing of a Legend: A Message from Our President

Updated on September 19, 2019

It is with great sadness that we have learned that longtime Board Member of The Genesis Foundation for Children and Celtics Legend and Hall of Famer John “Hondo” Havlicek has passed away at the age of 79. “John Havlicek is one of the most accomplished players in Boston Celtics history, and the face of many […]

News

#4Days4Murray: July 17-20

Posted on June 19, 2018

The 3rd anniversary of the passing of our Founder and President, Dr. Murray Feingold, will be July 17. This is three days before what would have been Dr. Feingold’s 88th birthday, on July 20th. In honor of the legacy of care that Dr. Feingold brought to this world with the creation of the Feingold Center for Children […]

Promotional Campaigns

Spring 2018 Fundraising Events Recap

Updated on September 19, 2019

Happy “unofficial” start of summer! With three big events under our belt, The Genesis Foundation is excited to keep the ball rolling into a successful 2018! Check out the highlights and photos of the Gala, Fenway Day, and our first golf event of the year, The Big Break Courtyard~Pier 37 Open. Thank you to everyone […]

News

Plan for Therapy & Performing Arts Expansion

Posted on May 23, 2018

2017 marked a new beginning for our Therapy & Performing Arts programs: after an eight-year pause, we expanded! In 2018, The Genesis Foundation hopes to fund even more children for these life-changing enrichment programs, such as music or equine therapy. You can help! $10: Sponsor a child for 1 group session of music therapy $100: […]