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Here’s what’s happening at The Genesis Foundation For Children.

Meet The Grantee: Lovelane Therapeutic Horseback Riding Program

Posted on February 28, 2023

Wonderful things can be accomplished when non-profits support one another. Lovelane, located in Lincoln, MA, is a pediatric, therapeutic horseback riding program for children with special needs. In a typical […]

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The Genesis Foundation Announces a New Relationship with Mass General for Children

Updated on February 1, 2023

The Genesis Foundation for Children has announced a gift of $1,160,000 to Mass General for Children (MGfC) to expand wraparound care for patients with rare genetic conditions and their families. […]

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“Teamwork Makes the Dream Work”

Updated on December 14, 2022

It was the morning after Thanksgiving. Julie and Rick Cincotta woke up to a dolphin-like sound on their baby monitor. They immediately ran into their 3-month-old son Joey’s room to […]

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Did You Know That 300 Million People Live With A Rare Disease?

Updated on February 25, 2022

February 28th – The Rarest Day of The Year Is Rare Disease Day February 28th is Rare Disease Day. “In the United States, a rare disease is defined as a […]

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Neve riding a horse named Ruby at Horse SenseAbility in Sherborn, MA, and supported by The Genesis Foundation for Children

Equine-Assisted Therapy Helps Fourth Grader with Rare Disease Improve Spacial Awareness, Strength, and Self-Confidence

Updated on February 25, 2022

Neve is not your average ten-year-old fourth grader. Although you wouldn’t know it from looking at her, Neve has a rare genetic disorder called Trisomy X. One in 1,000 females […]

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Unleashing the Power of Self-Compassion: A Resolution to Suffer Less

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com I enjoy the goal-oriented practice of setting goals. However, I want to approach this year differently. Instead of using self-critical thoughts to […]

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Gaining Control with Gratitude

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com It was 3am, and I could not sleep. We had just been told that our 4-month-old son’s brain had “folded wrong” in […]

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Learning to juggle it all as a caregiver: The Four States of a Caregiver's Identity

Learning to Juggle it All as a Caregiver: The Four States of the Caregiver’s Identity

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com In the weeks after our infant son was diagnosed with a rare brain malformation, I had an identity crisis. All of a […]

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my son take his first independent steps in his gait-trainer

Cultivating Flexible Hope: A look at the emotional cycles in chronic illness

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked […]

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How to help young kids cope when a parent has to isolate

Updated on February 8, 2022

Reposted from Boston Children’s Hospital Posted on January 31, 2022 by Katie Paradis If you’ve tested positive for COVID-19 and need to isolate or quarantine, you may have questions and […]

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