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Blog & News

Here’s what’s happening at The Genesis Foundation For Children.

Explosion in Medical Knowledge Doesn’t Make It Easier for Affected Families

Updated on July 28, 2021

Learn how the advances in medicine do not ease the burden on the family for children born with rare genetic disorders. Where medicine may not be able to help, The Feingold Center for Children can. Please, consider making a gift today to continue funding the extraordinary care that The Genesis Foundation for Children provides.   […]

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Patient Continues Dr. Murray Feingold’s Legacy

Updated on July 16, 2021

Tom Hamel was born in 1973 with Treacher Collins syndrome, a rare genetic disorder characterized by abnormalities of the head and face. Tom’s parents brought him to Dr. Murray Feingold when he was only six months old. Diagnosing Tom’s congenital disease was not the challenge; it was determining how and when to treat it so that Tom […]

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The Legacy & Future of Coordinated Care

Updated on July 12, 2021

About Since 1982, our mission to provide coordinated care for children born with rare diseases or genetic disorders has not wavered. In addition to funding The Feingold Center located at Boston Children’s Hospital, we also fund programs and services that assist our patients and their families. The Feingold Center, led by Dr. Catherine B. Nowak, […]

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2022 Grant Application for The Genesis Foundation for Children

Updated on July 12, 2021

The Genesis Foundation for Children is accepting applications for 2022 through September 4, 2021. Please submit your application via email to rseverson@thegenfound.org. You can download the application by clicking on the link below. The Genesis Foundation for Children Grant Application for 2022

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In Memoriam, Walter Roenick

Updated on January 14, 2021

Dear friends, It is with great sadness that I inform you of the passing of Wally Roenick on January 6th. A Director of The Genesis Foundation for Children for many years, Wally came to us through Mobil Oil, where he and his company were a bedrock of financial support for Murray Feingold and his mission […]

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Types Of Adaptive Mobility Devices For People With Disabilities

Updated on September 29, 2020

“Assistive technologies are an important addition to physical and occupational therapy.”  – Dr. Catherine Bearce Nowak Fourteen percent of people in the US have a mobility disability. Everyday tasks like getting out of bed in the morning, walking, or even sitting on a chair can present challenges for adults and children with mobility disabilities. By […]

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95% of Rare Disease Patients Affected by COVID-19

Updated on June 18, 2020

COVID-19 is causing significant challenges for millions of Americans living with rare diseases. People with underlying conditions are at risk of more severe illness from COVID-19, and rare disease patients, their caregivers and family members are seeing their lives disrupted in numerous other ways.  The National Organization for Rare Disorders (NORD) conducted a survey of the rare disease community in early April to help understand and bring […]

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Patient Narrative: The Nozzolillo Family

Posted on December 18, 2019

The word is Grant– in the verb form it means to be given something…the dictionary explains (a right, a power… property etc.) to bestow on, impart to, present with… On August 22nd 2012, my husband Mike and I jumped in the car- as planned- leaving our home in Westwood with my toes manicured, casseroles frozen […]

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Patient Narrative: The Vekiarides Family

Updated on November 11, 2019

We were referred to the National Birth Defect Center (currently known as the Feingold Center for Children), by our pediatrician when Anna was first born. We will be forever grateful for that recommendation. By the time we had gotten to Dr. Feingold, he had many years of experience to draw upon. He knew the immense […]

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Patient Narrative: The DeBlasio Family

Updated on November 11, 2019

When I was 18 weeks pregnant with my daughter, Katie (now 17 years old), my late husband and I discovered that Katie had Down syndrome. For the first year of Katie’s life, she was seen at Children’s Hospital in the Down syndrome clinic. We were living in Waltham and with 3 young children within 3.5 […]

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