Here’s what’s happening at The Genesis Foundation For Children.
Learn how the advances in medicine do not ease the burden on the family for children born with rare genetic disorders. Where medicine may not be able to help, The […]
Tom Hamel was born in 1973 with Treacher Collins syndrome, a rare genetic disorder characterized by abnormalities of the head and face. Tom’s parents brought him to Dr. Murray Feingold when […]
Since 1982, our mission to provide coordinated care for children born with rare diseases or genetic disorders has not wavered. In addition to funding The Feingold Center located at Boston […]
The Genesis Foundation for Children is accepting applications for 2022 through September 4, 2021. Please submit your application via email to rseverson@thegenfound.org. You can download the application by clicking on […]
Dear friends, It is with great sadness that I inform you of the passing of Wally Roenick on January 6th. A Director of The Genesis Foundation for Children for many […]
“Assistive technologies are an important addition to physical and occupational therapy.” – Dr. Catherine Bearce Nowak Fourteen percent of people in the US have a mobility disability. Everyday tasks like […]
COVID-19 is causing significant challenges for millions of Americans living with rare diseases. People with underlying conditions are at risk of more severe illness from COVID-19, and rare disease patients, their caregivers and family members […]
The word is Grant– in the verb form it means to be given something…the dictionary explains (a right, a power… property etc.) to bestow on, impart to, present with… On […]
We were referred to the National Birth Defect Center (currently known as the Feingold Center for Children), by our pediatrician when Anna was first born. We will be forever grateful […]
When I was 18 weeks pregnant with my daughter, Katie (now 17 years old), my late husband and I discovered that Katie had Down syndrome. For the first year of […]