Blog & News
Here’s what’s happening at The Genesis Foundation For Children.
Blogs
Getting A Diagnosis Was Life-Changing
Updated on February 10, 2022When Tina and her husband, Ernie, had their second daughter, Myla, they knew early on that something wasn’t right. Myla wasn’t hitting her developmental milestones. Unlike their older daughter, Myla […]
Blogs
Explosion in Medical Knowledge Doesn’t Make It Easier for Affected Families
Updated on February 10, 2022Learn how the advances in medicine do not ease the burden on the family for children born with rare genetic disorders. Where medicine may not be able to help, The […]
Blogs
Patient Continues Dr. Murray Feingold’s Legacy
Updated on February 9, 2022Tom Hamel was born in 1973 with Treacher Collins syndrome, a rare genetic disorder characterized by abnormalities of the head and face. Tom’s parents brought him to Dr. Murray Feingold when […]
Blogs
Rachael Feingold Stein’s Tribute to her Father Dr. Murray Feingold
Updated on August 9, 2021Since 1982, our mission to provide coordinated care for children born with rare diseases or genetic disorders has not wavered. In addition to funding The Feingold Center located at Boston […]
News
2022 Grant Application for The Genesis Foundation for Children
Updated on July 12, 2021The Genesis Foundation for Children is accepting applications for 2022 through September 4, 2021. Please submit your application via email to rseverson@thegenfound.org. You can download the application by clicking on […]
Blogs
In Memoriam, Walter Roenick
Updated on January 14, 2021Dear friends, It is with great sadness that I inform you of the passing of Wally Roenick on January 6th. A Director of The Genesis Foundation for Children for many […]
Blogs
Types Of Adaptive Mobility Devices For People With Disabilities
Updated on September 29, 2020“Assistive technologies are an important addition to physical and occupational therapy.” – Dr. Catherine Bearce Nowak Fourteen percent of people in the US have a mobility disability. Everyday tasks like […]
News
95% of Rare Disease Patients Affected by COVID-19
Updated on June 18, 2020COVID-19 is causing significant challenges for millions of Americans living with rare diseases. People with underlying conditions are at risk of more severe illness from COVID-19, and rare disease patients, their caregivers and family members […]
Family Narratives
Patient Narrative: The Nozzolillo Family
Posted on December 18, 2019The word is Grant– in the verb form it means to be given something…the dictionary explains (a right, a power… property etc.) to bestow on, impart to, present with… On […]