Here’s what’s happening at The Genesis Foundation For Children.
February 28th – The Rarest Day of The Year Is Rare Disease Day February 28th is Rare Disease Day. “In the United States, a rare disease is defined as a […]
Neve is not your average ten-year-old fourth grader. Although you wouldn’t know it from looking at her, Neve has a rare genetic disorder called Trisomy X. One in 1,000 females […]
By Laura Will Reprinted with permission from www.Knowrare.com I enjoy the goal-oriented practice of setting goals. However, I want to approach this year differently. Instead of using self-critical thoughts to […]
By Laura Will Reprinted with permission from www.Knowrare.com It was 3am, and I could not sleep. We had just been told that our 4-month-old son’s brain had “folded wrong” in […]
By Laura Will Reprinted with permission from www.Knowrare.com In the weeks after our infant son was diagnosed with a rare brain malformation, I had an identity crisis. All of a […]
By Laura Will Reprinted with permission from www.Knowrare.com Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked […]
Reposted from Boston Children’s Hospital Posted on January 31, 2022 by Katie Paradis If you’ve tested positive for COVID-19 and need to isolate or quarantine, you may have questions and […]
I wanted to let you know that we exceeded our 2021 year-end campaign goal. Everyone’s donations quickly added up to exceed our goal of $100,000. We couldn’t have done it without such a […]
We’re making an impact, so can you. In 2021, The Feingold Center for Children saw 950 patients, that’s a 63% increase versus the year before. Of these patients, approximately 55% […]
Your Daughter Will Never Walk or Talk. Defying the odds, Amy never thought she’d be able to have children. Her pregnancy was high-risk due to her own medical issues. However, […]
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