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Here’s what’s happening at The Genesis Foundation For Children.

Did You Know That 300 Million People Live With A Rare Disease?

Updated on February 25, 2022

February 28th – The Rarest Day of The Year Is Rare Disease Day February 28th is Rare Disease Day. “In the United States, a rare disease is defined as a […]

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Unleashing the Power of Self-Compassion: A Resolution to Suffer Less

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com I enjoy the goal-oriented practice of setting goals. However, I want to approach this year differently. Instead of using self-critical thoughts to […]

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Learning to juggle it all as a caregiver: The Four States of a Caregiver's Identity

Learning to Juggle it All as a Caregiver: The Four States of the Caregiver’s Identity

Updated on February 25, 2022

By Laura Will Reprinted with permission from www.Knowrare.com In the weeks after our infant son was diagnosed with a rare brain malformation, I had an identity crisis. All of a […]

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