Here’s what’s happening at The Genesis Foundation For Children.
Wonderful things can be accomplished when non-profits support one another. Lovelane, located in Lincoln, MA, is a pediatric, therapeutic horseback riding program for children with special needs. In a typical […]
The Genesis Foundation for Children has announced a gift of $1,160,000 to Mass General for Children (MGfC) to expand wraparound care for patients with rare genetic conditions and their families. […]
It was the morning after Thanksgiving. Julie and Rick Cincotta woke up to a dolphin-like sound on their baby monitor. They immediately ran into their 3-month-old son Joey’s room to […]
February 28th – The Rarest Day of The Year Is Rare Disease Day February 28th is Rare Disease Day. “In the United States, a rare disease is defined as a […]
Neve is not your average ten-year-old fourth grader. Although you wouldn’t know it from looking at her, Neve has a rare genetic disorder called Trisomy X. One in 1,000 females […]
By Laura Will Reprinted with permission from www.Knowrare.com I enjoy the goal-oriented practice of setting goals. However, I want to approach this year differently. Instead of using self-critical thoughts to […]
By Laura Will Reprinted with permission from www.Knowrare.com It was 3am, and I could not sleep. We had just been told that our 4-month-old son’s brain had “folded wrong” in […]
By Laura Will Reprinted with permission from www.Knowrare.com In the weeks after our infant son was diagnosed with a rare brain malformation, I had an identity crisis. All of a […]
By Laura Will Reprinted with permission from www.Knowrare.com Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked […]
Reposted from Boston Children’s Hospital Posted on January 31, 2022 by Katie Paradis If you’ve tested positive for COVID-19 and need to isolate or quarantine, you may have questions and […]