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Our Impact

The Genesis Foundation for Children supports care that treats the whole patient, not just their diagnosis. As we grow, we’re able to provide even more care to families in need.

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1,000

The Feingold Service
provides coordinated care for approximately 1,000
patients per year at MGfC.

60

On average, genetic clinicians spend 60-90 minutes with each patient – allowing for detailed visits.

5

A patient is referred to about 5 medical specialists, therapeutics, or social service appointments.

Thanks to funding from The Genesis Foundation, integrating The Feingold Service at MGfC has significantly improved efficiency within the division and the overall patient experience.

Since 2022…

15

The number of days the new patient wait time has decreased by

116%

The number of new patients seen within 14 days has increased by

21%

The average number of new patients seen per month has increased by

Continuing To Grow

At a time when many major hospitals are closing pediatric genetics clinics due to costs, we are proud to be doubling down on this all too-rare standard of care.

Since The Genesis Foundation for Children and Mass General for Children launched their relationship in 2022, The Division of Medical Genetics and Metabolism continues to grow their program with the goal of providing care coordination for more families in need of support. Here are just a few ways The Feingold Service has expanded access to care coordination for families in need:

  • The number of care coordinators working with patient families has tripled.
  • A new genetic counselor assistant (GCA) offers genetic testing support to families and clinicians, helping navigate insurance authorizations for expensive and complex tests, working directly with families to ensure the tests are completed properly, and that clinicians and patients receive the results in a timely fashion.
  • Access to genetic care has increased by expanding Mass General’s services to Waltham, Cape Cod, and soon, Nantucket Cottage Hospital.

Meet The Families We Serve

Patient Story

The Frankel Family

Kalli Frankel always felt there was a deeper explanation for her daughter, Sefi’s developmental delays, despite her pediatrician telling them to “wait and see” when she tried to address her concerns. She constantly hoped Sefi would have a sudden leap in her development and her “worries would fade away.” It wasn’t until November of 2023 that Kalli and her husband, Nick, would finally get the answers they were looking for.

READ THE FRANKEL FAMILY’S STORY

Patient Story

The Cincotta Family

The morning after Thanksgiving, Julie and Rick Cincotta woke up to a dolphin-like sound on their baby monitor. They immediately ran into their 3-month-old son Joey’s room to find him having a seizure, his first of many after that. That was the beginning of their long and continuing medical journey.

READ THE CINCOTTA FAMILY’S STORY

Patient Story

Christine Seeley

Christine became a full-time caretaker of three young children at 68 years old. On January 6, 2018, Christine was granted custody of her great grandson, Noah, and his two siblings who were being severely neglected. Noah, an infant at the time, had significant developmental issues, and had the court not ruled in Christine’s favor that day, Noah would certainly not be where he is today.

READ MORE OF CHRISTINE’S STORY

Our gratitude to The Feingold Center for Children & The Genesis Foundation is immeasurable. Because of their assistance, we have been able to spend more time focused on loving Daniel and his younger brother Brendan. By providing and facilitating optimal care for Daniel, he has reached his true potential and our family has been transformed.

The O’Donnell Family

Raising Ian has been a joy and a challenge. He has taught us all life’s lessons and positively influenced us and our core values and made us who we are today. He is turning 22 this month and is a kind, compassionate, thoughtful young man. The Genesis Foundation and NBDC played an integral role in his development and we will always be grateful to them for all of their encouragement, caring and support. We couldn’t have done it without them!

Deb Wilson

When I learned that my child had problems, I was sick with worry. It is an indescribable feeling of helplessness and powerlessness, fear and anxiety. I don’t know if those feeling ever went away completely. I will always worry. But I now know I don’t have to go it alone. We have the team of professionals at the Feingold Center for Children to thank for that.

Denise Porcello

Bella would need many specialists and we wanted the top ones. The Feingold Center stepped in immediately to help with that and still organizes Bella’s yearly visits with her team. It takes a huge amount of stress off of us as the parents to schedule everything, which is extremely important since Morquio is a progressive disorder.

The Burton Family