Impact of The Genesis Foundation
I could see the fear in my wife’s eyes. Dr. Feingold took a lot of time to explain everything to us that day. The most important thing he said was that it would be a journey, but one that he would take WITH us. In that moment, I saw the fear in my wife’s face disappear.
– Michael Murphy, father of Zachary, a patient of The Feingold Center for Children
Our gratitude to The Feingold Center for Children & The Genesis Foundation is immeasurable. Because of their assistance, we have been able to spend more time focused on loving Daniel and his younger brother Brendan. By providing and facilitating optimal care for Daniel, he has reached his true potential and our family has been transformed.
– The O’Donnell Family
Bella would need many specialists and we wanted the top ones. The Feingold Center stepped in immediately to help with that and still organizes Bella’s yearly visits with her team. It takes a huge amount of stress off of us as the parents to schedule everything, which is extremely important since Morquio is a progressive disorder.
– The Burton Family
Raising Ian has been a joy and a challenge. He has taught us all life’s lessons and positively influenced us and our core values and made us who we are today. He is turning 22 this month and is a kind, compassionate, thoughtful young man. The Genesis Foundation and NBDC played an integral role in his development and we will always be grateful to them for all of their encouragement, caring and support. We couldn’t have done it without them!
– Deb Wilson
When I learned that my child had problems, I was sick with worry. It is an indescribable feeling of helplessness and powerlessness, fear and anxiety. I don’t know if those feeling ever went away completely. I will always worry. But I now know I don’t have to go it alone. We have the team of professionals at the Feingold Center for Children to thank for that.
– Denise Porcello
“We went to two specialists before Dr. Nowak. Both just said that he would grow out of it eventually….but Dr. Nowak knew that just wasn’t the case.”
– Hilari Simmons
Patient Family Stories
Sam would have many orthopedic problems and surgeries ahead, in addition to being followed by cardiology, pulmonology, endocrinology, vision and hearing specialists, ENT’s and oncologists. Murray and his staff helped manage Sam’s health care by making various appointments on the same day to save us from making more trips than necessary to Boston or Waltham.
To read the Caswell Family’s full story, click here.
At the age of three, and countless appointments later, Jaylin had her first visit with Dr. Feingold in The Feingold Center. I was apprehensive about adding yet another doctor to the list of specialists Jaylin saw, but was encouraged by many families in the Down syndrome community that it was worth it.
To read the Melville Family’s full story, click here.
Delivery by emergency C-section revealed an apparently healthy but tiny little girl. Perhaps it was fortunate that we were amateur parents; 3lbs 13oz didn’t terrify us then as it would now.
To read the O’Connor Family’s full story, click here.
Drew was the youngest case of Monosomy 18P that Dr. Nowak has ever seen or diagnosed. Usually, children with this disorder are diagnosed around the age of 4-years old, but because he was diagnosed at such a young age, his prognosis is much better than other people with his disorder.
To read the Simmons Family’s full story, click here.
It went something like this: “There will be many moments of joy, hope and love; but, it is okay to feel the many moments of frustration, anger and sadness.” such was one of the more remarkable conversations we had with Dr. Murray Feingold.
To read the Vekiarides Family’s full story, click here.