Facts about Genetic Disorders:
(Updated March 2018; All facts from the CDC, Mayo Clinic, and NORD)
- 1 in 33 children is born with a physical, intellectual, or genetic disorder.
- Every 4 ½ minutes a child is born with a birth disorder in the US (meaning 120,000 babies affected each year).
- Not all birth disorders can be prevented. But there are things a woman can do before and during pregnancy to increase her chance of having a healthy baby. See how we support identifying risk factors through genetic counseling.
- A birth disorder can be found before birth, at birth, or any time after birth: most occur within the first 3 months of pregnancy, which is an important stage of physical development. Many factors contribute to the risk of a woman having a child with a birth disorder: these factors include our genes, our behaviors, and things in the environment.
- A 40-year-old woman has a 1 in 100 chance of having a child born with Down Syndrome.
- Birth disorders are the leading cause of infant death in the United States, accounting for about 1 in 5 infant deaths.
Facts about Developmental Disabilities:
- Developmental disabilities are a diverse group of severe chronic conditions that are due to mental and/or physical impairments. People with developmental disabilities have problems with major life activities such as language, mobility, learning, self-help, and independent living. Developmental disabilities begin anytime during development up to 22 years of age and usually last throughout a person’s lifetime.
- About 1 in 6 children in the U.S. have a developmental disability:
- Males had twice the prevalence of any developmental disability than females and more specifically had higher prevalence of ADHD, autism, learning disabilities, stuttering/stammering and other DDs.
- Autism Spectrum Disorder (ASD) occurs in all racial, ethnic, and socioeconomic groups, but is about 4.5 times more common among boys than among girls.
- One in 68 children has been diagnosed with ASD.
- The estimated identification of ASD increased roughly 123% during 2002 to 2010.
Facts about Rare Diseases:
- A “rare disease” is any disease, disorder, illness, or condition affecting fewer than 200,000 people in the United States.
- 1 in 10 Americans has a rare disease; of the 30 million people worldwide that have a serious, lifelong condition, more than half are children.
- 7,000 rare diseases exist, and fewer than 500 have FDA-approved treatments.
- Patients with rare diseases are frequently misdiagnosed or undiagnosed.
- 80% of rare diseases are genetically based.
- The Feingold Center for Children has an extensive network of satellite clinics, allowing many of our patients to be seen in their own communities.
- The children who come to The Feingold Center for Children benefit from coordinated care.
With your support, we can continue to provide the coordinated and humanistic care children and families deserve.
Understanding more about genetic disorders:
From the University of Utah: Genetic Science Learning Center
Salt Lake City (UT): Genetic Science Learning Center; 2014 [cited 2016 Oct 20]
Disabilities, Ableism, and Social Justice:
From Stop Ableism Inc.: Understanding Ableism and Disabilities in “Just Ask: Integrating Accessibility Throughout Design” by Shawn Lawton Henry; 2003-2007
Understanding Down Syndrome:
Helpful Links and Resources
From the Massachusetts Developmental Disabilities Council: Over 80 Resources & Helpful Links including education, healthcare, housing, accessibility laws, and advocacy; 2016